ແຕ່ງກິນກະເປັນຢູ່ໃດ🤣#เทนร์วันนี้ #poppyໂລຊັ່ນ🧴✨🤍 #ປອ໋ບປີ່ໂລຊັ່ນ🧴❤️ #ฟีดดดシ #ເອົາຂື້ນຫນ້າຟີດແນ່ນ່າາ🥺🖇️❤️

This video captures just over one month in the lives of families fighting Sanfilippo syndrome type B — a rare, terminal childhood disease. In less than 36 days, families and communities across the country raised $4.2 million by Thanksgiving, and met our $5.5 million goal by December 1, to pursue potential early access to a treatment many parents were never told existed. That milestone matters. But it is not the finish line. The process still in front of us — access decisions, timelines, regulato