Explore NORD's research funding opportunities and submit innovative proposals advancing rare disease understanding, treatment, and potential breakthrough discoveries.

Contact Us NORD is leading the fight to improve the lives of patients with rare diseases. For more information or to learn more, use the contact details below or sign up for email …

Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, …

NORD strongly recommends discussing options to participate in research with your doctor. Research can help identify new diseases, expand our understanding of known diseases, and …

Home / Understanding Rare Disease We acknowledge the hard work of families, caregivers and others with programs like NORD Caregiver Respite which allows people some time away while …

6 days ago · Stay informed with the latest rare disease research, breakthrough treatments, and patient stories from NORD's expert team of medical professionals.

Representatives of patient organizations who are interested in listing an organization in the NORD’s Organizational Database (ODB) may contact NORD.

Access comprehensive resources, research tools, and professional insights for clinicians and researchers specializing in rare disease diagnosis and treatment.

Jul 25, 2023 · Learn about Pfeiffer Syndrome, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find resources

Jul 18, 2025 · Learn about Pontocerebellar Hypoplasia, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find